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Resources - Help!
for Those with Multiple Chemical Sensitivity
 
Caution to all MCS/ES persons:
Check all advice with your doctor. Some sources are not trained in addressing the specific needs of MCS/ES persons. Natural products can provoke serious reactions, depending on the individual case.
 
1 Additional MCS Resources
2 Art Materials Hazards
3 Chats and Message Boards
4 Conferences
5 Disability Information
Legal Help
Social Security Disability
6 Electro Magnetic Field Control (EMF)
7 Emergency Preparedness for Disabiliies
8 Housing
9 Insurance Help for Alternative Medicine
10 Legal Referrals for Chemical Injury
Trying to Explain MCS/EI?. . . to my lawyer
11 MCS/EI Environmental Counseling
12 MCS/EI Information
Studies
Newsletters
13 MCS/EI Validity Report
14 Medical Help
Other Medical Help for MCS Persons
15 Organizations for MCS
16 Chemical Injury in the Workplace
Worker's Compensation
How to Prevent It
17 Safer Dental
18 Safer Environment Speaker, Consultants, and Counseling
19 Support for MCS/EI
20 Test Kits and Toxicology
21 Travel for MCS and Access
22 Trying to Explain MCS/EI?. . . to myself, family and friends

1 Additoinal MCS Resources  
www.snowcrest.net/lassen/eiorgs.html#dent
These listings have been gathered from various sources and are presented here with the intent to provide hard won information to anyone whom it may help.

More MCS Sites. Health and Medicine Website Directory. www.internet-health-directory.com/Conditions_and_Diseases_Immune_Disorders_Multiple_Chemical_Sensitivity.html

2 Art Materials Hazards  
True Art. Information about art hazards, art materials, and online art material stores. www.trueart.info
See also Books
 
3 Chats and Message Boards
24 Hour Chat. Chemical Injury Information Network. Become a member, visit chat room, hosted one hour, 5 days per week (password required), and receive "Our Toxic Times" Newsletter. Phone: 406-547-2255. www.ciin.org

Chemical Injury Support Registry was established for the main purpose of bringing together those who wish to be active in various write-in campaigns supporting issues regarding chemical injury. This list is also for those who would like to produce change in the manufacturing of chemically based products to those that are non-toxic and chemical-free. Posts for this group should be limited to the following: 1). Identifying a particular chemical issue members would like to start a write-in campaign for. 2). Posts should include background information regarding the issue, such as a newspaper article link, etc. Also any contact information for individuals the group should send email to. Thank you for being an active member of the chemical injury community. Your support is appreciated. health.groups.yahoo.com/group/chemicalinjurysupportregistry

Discussion Board. MCSurvivors. You may still get a notice asking you to pay, but you DO NOT have to pay to use the MCSurvivors discussion board. www.communityzero.com/go.jsp?user_name=Cowgirl7&strAlias=mcsurvivors or www.communityzero.com/mcsurvivors

Message Board. Environmental Health Center (EHC). Dallas, TX. Clinic for MCS/EI. Phone: 214-368-4132. www.ehcd.com

MCS Discussion Group. Yahoo Groups - People afflicted with Chemical Sensitivity, Chronic Carbon Monoxide Poisoning &/or Disorders of Porphyrin Metabolism can talk about their illness, inquire with others on avoidence, methods of cleaning & products one can use for necessary hygiene. groups.yahoo.com/group/MultipleChemicalSensitivity

Multiple Chemical Sensitivity/Chemical Injury Message Board. This is an on-line health discussion forum called news24seven.tv:HEALTHTALK. This is a discussion forum on topics of your choice. You may also choose to read the latest health news headlines, towards the bottom of this page. Click on the link for multiple chemical sensitivity/chemical injury Diana Buckland 7/11/03. The contents frame shows the titles of all articles posted to the discussion. You may also, post a new article (starting a new thread) or search the articles. www.investigatemagazine.com/disc2gentalk_frm.htm

4 Conferences
American Academy of Environmental Medicine. Hosts a conference every year and teaches courses. Phone: 316-684-5500. E-mail: aaem@swbell.net Web site: www.aaem.com

Chemical Injury Information Network (CIIN) hosts an MCS Conference October 3 -5, 2003, Hilton Garden Inn, Fairfax, VA. Contact CIIN forregistration and details. Phone: 406-547-2455. E-mail: chemicalinjury@ciin.org or www.ciin.org

Multiple Chemical Sensitivity Conference. September 2003. Presented by the Environmental Law Center, United Kingdom. Internationally eminent speakers. For details see page on this site MCS/EI News and Want Ads or www.elc.org.uk

Yearly Symposium: "Man and His Environment in Health and Disease." Dr. William J. Rea, Director of the Environmental Health Center-Dallas, Texas, and the American Environmental Health Foundation. Attended by physicians and researchers from other countries. Phone: 214-368-4132. www.ehcd.com

Teleconference
Dr. Gloria Gilbere. Protect yourself and your family from the dangerous effects of toxic mold and other environmental hazards from the comfort of your home or office. Four part teleconference series, begins May 7. Dr. Gilbere is an internationally renowned environmental illness consultant, natural health practitioner, research writer, and an advocate for toxic-free living and the chemically injured, as well as a leading authority on the causes, effects, and drug-free solutions for chemically induced immune system disorders, fibromyalgia, toxic mold, and digestive and elimination disorders. Register now and receive a free copy of Dr. Gilbere’s best selling Ebook (a $29.95 value) I’ve Been Poisoned By My Body. www.1healthyworld.com/experts/Speaker-Schedule.cfm (Post 4-10-03)
 
5 Disability Information

6 Electro Magnetic Field Control (EMF)

7 Emergency Preparedness for Disabilities
Emergency Evacuation Preparedness: Taking Responsibility For Your Safety
A Guide For People with Disabilities and Other Activity Limitations, By June Isaacson Kailes, Disability Policy Consultant June Isaacson Kailes, Disability Policy Consultant, Playa del Rey, California and The Center for Disability Issues and the Health Profession, Western University of Health Sciences, Pomona, California www.cdihp.org
Purchase from site or download and make copies from www.cdihp.org/pdf/finalv4brochure.pdf

Emergency Preparedness Initiative – Guide on the Special Needs of People with Disabilities for Emergency Managers, Planners & Responders. The National Organization of Disabilities. An excellent guide. www.nod.org/pdffiles/epi2002.pdf

8 Housing

9 Insurance Help for Alternative Medicine  
Software aids medical practice billing with proper codes for alternative health procedures. Click on "Insurance Companies" for current statistics of demand for alternative medicine and current legislation pending for alternative health care. "The public will have easy access to insurance funds for appropriate complimentary and alternative medicine treatments when practitioners can submit valid claims and payers can verify and process these claims."
www.alternativelink.com
 
10 Legal Referrals for Chemical Injury
11 MCS/EI Environmental Counseling
See Safer Environment Consultants for MCS and ES; MCS/EI Counseling, Treatment, and Evaluation; and Treatment for Depression on Environmental Speaker, Consultants, and Psychological Counseling
 
12 MCS/EI Information
Chemical Injury Information Network. "Our Toxic Times" Newsletter, information, housing ads, and chat room. Phone: 406-547-2255. For the recently chemically injured, see the "Library" page. www.ciin.org

Chemical Injury/Poisoning Flash code. Medical diagnostic code for chemical injury posted for physicians. See Injury and Poisoning 66.17.18.109/flashcode/home.jsp

Chemical Injury Support Registry was established for the main purpose of bringing together those who wish to be active in various write-in campaigns supporting issues regarding chemical injury. This list is also for those who would like to produce change in the manufacturing of chemically based products to those that are non-toxic and chemical-free. Posts for this group should be limited to the following: 1). Identifying a particular chemical issue members would like to start a write-in campaign for. 2). Posts should include background information regarding the issue, such as a newspaper article link, etc. Also any contact information for individuals the group should send email to. Thank you for being an active member of the chemical injury community. Your support is appreciated. health.groups.yahoo.com/group/chemicalinjurysupportregistry

Coalition Against Toxins. www.coalitionagainsttoxins.com

Environmental Illness Society of Canada. Good site for information, MCS/EI stories and music.
www.eisc.ca/index1.html

"Goldenfire." MCS/EI story, message board and links. goldenfiresmcs.vr9.com

Immune Web. Immune is for people (and their significant others, family, friends, and medical care workers) with various immune-system related ailments such as: chronic fatigue syndrome, candida, lupus, fibromyalgia, Epstein-Barr, multiple allergies, environmental illness, chemical sensitivity, etc., and the symptoms that result from any of the above, including learning disabilities, migraines, asthma, hypoglycemia, etc. www.immuneweb.org/

MCS/EI Information, Louisville, KY. Golfing without herbicides link, people oriented and other interactive links. users.adept.net/~mcsinfo

MCS/EI Survivors. www.mcsurvivors.com

MCS for Beginners. www.geocities.com/HotSprings/Spa/4415/index.html

MCS: Health and Environment. Supporting the Chemically Sensitive. "What is MCS? " Subscribe to the Canary News. Free introductory copy. www.mcshealthenviron.org

MCS Homepage. View the MCS Awareness Proclamation in Florida, for 2003, signed by Governor Jeb Bush, and the MCS Awareness Week Proclamation in Broward county, signed by the Mayor of Broward County, 2003. Every year since 2000, Christiane Tourtet writes to Governor Bush, and to the Mayor of Broward County and they have signed each MCS Proclamation. Links to diagnostic Spect scan image for MCS, Gulf War Syndrome and MCS story. www.nettally.com/prusty/mcs.htm (Editor's note: Concerning MCS as "permanent damage to certain brain cells," with the help of proper MCS medical specialists, and avoidnace of chemicals, MCS persons can have hope to recover and lead involved and functional lives. Concerning medical treatments, please consult and seek treatment with properly trained MCS specailists. Medical)

MCS NYC: living with Multiple Chemical Sensitivity in New York City. "We are disabled, cannot work, and are primarily homebound. We are unable to do many basic things for ourselves. We live in New York City. This is a collection of resources that has helped us. It has been discovered and gathered the hard way, after many crises and setbacks, through periods of severely crippling illness, over many years of struggle." This website was compiled to assist New Yorkers who have suffered chemical injury. It is hoped that it will also be valuable to anyone trying to understand, cope with, and assist someone with Multiple Chemical Sensitivity (MCS), or Environmental Injury (EI). www.mcsnyc.com

MCS Referral & Resources. Peer-reviewed scientific papers, official reports, books and book chapters on MCS. The peer-reviewed medical literature on MCS dates from 1952 but more than half the 400+ references identified by MCS R&R were published since 1992. www.mcsrr.org/resources/bibliography

MCS Resources for Multiple Chemical Sensitivity. MCS groups by geographic area, MCS lodging questionnaire, links for MCS resources, entire text of "What Would Terry Do?" humorous book about MCS for your reading pleasure. www.princesstigerlily.com/mcs/index.html

Mega Search Engine. Over 300 sites relating to MCS/EI. www.metagopher.com

Multiple Chemical Sensitivity (Environmental Illness) by Jacki Barineau. www.ourlittleplace.com/mcs.html

Red Flags Weekly. Raising Issues, Facing Controversies, Exploring Ideas in Health, Medical Science And Personal Growth. Nicolas Regush A former science/medical writer for ABC News is highly distressed at the poor quality of information available today on medicine, the politics of medicine, science, politics of science, drugs, disease processes, etc. He features articles on chemical injury related issues. www.redflagsweekly.com

The Environmental Connection. There is a compelling link between human illness and environment. Learn all you can about these issues and the steps you can take to lead a healthier life. You'll find information and resources about ecological and environmental health issues other news sources either don't have or won't dare tell you. Link to environmental e-cards. Subscribe to the newsletter. www.theenvironmentalconnection.com

The Medical Denial of Environmental Illnesses. Harold E Buttram, MD. Article on website. Also article on Childhood Autism, Predominantly an Environmental Illness. www.mercola.com/2001/dec/1/immunizations2.htm

Treatment for MCS. Perceived Treatment Efficacy for Conventional and Alternative Therapies Reported by Persons with Multiple Chemical Sensitivity. Fragranced Products Information Network. www.fpinva.org/EHP/5936/5936.html

Understanding Chemical Intolerance: Information Concerning Multiple Chemical Sensitivity, Chronic Fatigue Syndrome, and Gulf War Illness. 7-26-2002. A personal investigation by Don Richard Paladin www.immunesupport.com/library/showarticle.cfm/ID/3750/e/1/T/CFIDS_FM
ImmuneSupport.com
 
Washington State MCS Network. Medical, legal, housing, communication, and education
www.wsmcsn.homestead.com
 
Studies
A Review of a Two-Phase Population Study of Multiple Chemical Sensitivities. Environmental Health Perspectives Volume 111, Number 12, September 2003. Stanley M. Caress and Anne C. Steinemann, State University of West Georgia, Carrollton, Georgia, USA; Georgia Institute of Technology, Atlanta, Georgia, USA
Abstract In this review we summarize the findings of a two-phase study of the prevalence, symptomatology, and etiology of multiple chemical sensitivities (MCS). We also explore possible triggers, the potential linkage between MCS and other disorders, and the lifestyle alterations produced by MCS. www.fpinva.org/EHP/5940//5940.html

Collaborative on Health and the Environment. (CHE) Database summarizes many links between chemical contaminants and about 200 human diseases, disorders, or conditions. See Core Themes, "Does the dose make the poison?" for information on high exposure to poisons and chronic low level exposures. www.protectingourhealth.org

MCS Referral & Resources. Peer-reviewed scientific papers, official reports, books and book chapters on MCS. The peer-reviewed medical literature on MCS dates from 1952 but more than half the 400+ references identified by MCS R&R were published since 1992. www.mcsrr.org/resources/bibliography

Study of Sheep Dippers and Paroxynase. Letter sent to California Pesticide Regulatory Agency. Barbara Rubin. www.enviromental-toxins.org.uk/casefiles/rubinorganicphosphateletter.doc E-mail: Raisyl@webtv.net Environmental Toxins Foundation, March 8th 2002.

Newsletters
Canary News. Supporting the Chemically Sensitive. Free introductory copy. MCS: Health and Environment. www.mcshealthenviron.org
No Pace to Hide. Published bi-annually. $25.00 for subscription and membership with Cellular Phone Task Force. Information on health and environmental effects of wireless technology. Advocacy and support for electrically sensitive individuals. Arthur Firstenberg, Cellular Phone Task Force, P. O. Box 1337, Mendocino, CA 95460
Phone: 707-937-3990

Our Toxic Times. Newsletter for the chemically injured. Literary and art contest issue, and housing ads. Chemical Injury Information Network. Phone: 406-547-2255. www.ciin.org

PdS Disability Facts and Social Security Trends, Doug Smith. A quarterly newsletter designed to keep you abreast of changes in the laws, regulations, and policies related to Social Security Disability. Published in newsletter format, it offers insights on proving disability, exploring income-increasing opportunities without losing your benefits, and much more. $19.95/year. Send check/money order to: Physicians' Disability Services, Inc., P.O. Box 827, Arnold, MD 21012. Phone: 410/431-5279.

The Environmental Connection. There is a compelling link between human illness and environment. Learn all you can about these issues and the steps you can take to lead a healthier life. You'll find information and resources about ecological and environmental health issues other news sources either don't have or won't dare tell you. Subscribe to the newsletter. The May/June 2003 issue includes:  West Nile virus:  Separating fact from fiction;  Eloquent hero:  The life and legacy of Rachel Carson;  Please don't eat the dandelions:  Chemical vs. natural lawncare;  and organic gardening, as well as information about plastics, birth defects, safe spring cleaning tips, and much more!
www.theenvironmentalconnection.com
 
13 MCS/EI Validity Report
The Interagency Workgroup on Multiple Chemical Sensitivity, August 24, 1998
"It is appropriate for public health leadership to work to mitigate illness in persons with disorders that are not yet fully explainable. In so doing, it must be recognized that chemical agents found to be noxious by a significant portion of the population may, and often do, present public health hazards that lead to health concerns such as MCS."
To access the entire report: web.health.gov/environment/mcs/index.htm
 
14 Medical Help
 
Other Medical Help for MCS Persons
MCS persons have acheived considerable improvement from addressing other causes of a suppressed immune system with mainstream and/or alternative treatments.
 
15 Organizations for MCS

16 Chemical Injury in the Workplace

Worker's Compensation Pitfalls. Barbara Rubin. Helpful information about the difficulties to secure medical help for disability acquired at work. Letter for your congressperson.

Playing Industrial Hygiene to Win. Eileen Senn, MS, CIH. Comprehensive and informative article, heavily referenced.
17 Safer Dental
 
Dental Amalgam Mercury Syndrome (DAMS). International DAMS Newsletter. P.O. Box 64397, Virginia Beach, VA, 23467-4397. Phone: 800-311-6265 Contact: Teresa Kaiser.
For more information see:www.snowcrest.net/lassen/eiorgs.html#dent

See Dental Toxins and Nightmare on Dental Biocompatible Street under Gathering Stories for more on safer materials and dental experiences.

Safer Dental

18 Safer Environment Speaker, Consultants and Counseling

See  Environmental Speaker, Consultants, and Psychological Counseling

See also "Search for an EI Safe Haven" on MCS/EI Housing

19 Support for MCS/EI

Share, Care, and Prayer. Personal support newsletter for MCS/EI, member directory, and information. P.O. Box 2080, Frazier Park, CA 93225 www.sharecareprayer.org

Hands of Hope Ministry. Chaplain Jim Forbes and Jan Forbes, RN. Rural Route 1 Box 135 B, Hot Springs, SD 57747 Phone: 605-673-5565. Due to health considerations, please, no cell, cordless, or speaker phones. Office hours 11AM- 5PM Mountain time.

20 Test Kits and Toxicology

Pesticides
ToxFree, Inc., Analytical/Consulting Company. Air sample analyzed by gas chromatography for: Heptachlor, Cis Chlordane, Trans Chlordane, Aldrin. $199.00 Additional samples: $99.00 + Shipping Cost. 6410 McKeon Dr., San Antonio, Texas 78218 (800) 704-1662 www.dcci.com/toxfree
 
Mold and Water
Mold and Water Test Kits www.aehf.com/cgi-bin/web_store.cgi?product=labtest&cart_id=8875234.14388
 
Testing for Chemicals
Anderson Laboratories. PO Box 323, West Hartford, Vermont 05084 Phone 802-295-7344 jharca@hotmail.com www.andersonlaboratories.com
 
Testing for Chemical Injury Barbara Rubin. Chemically injured by pesticides, an MCS shares her knowledge and experience of toxicological testing as an aid for personal and legal protection.

Toxicology Lab. ETI Environmental Lab, 4730 Mountain Road, Suite 21, Pasadena, MD 21122 (410) 437-4100 Fax:(410) 437-5400 Robert Simon, Ph.D. ETIRKS@aol.com USPS Mailing address: ETI Environmental Lab, P. O. Box 2410 Pasadena, MD 21123

21 Travel for MCS and Access

MCS Travel Resources. The Safer Travel Directory. An exhaustive listing of vacation destinations for the person with Environmental Illness or Multiple Chemical Sensitivities. RV Tips for the Chemically Sensitive, Pen-Pal Section, also notices of events taking place. Bed & Breakfasts, motels, and MCS support groups. mcstravel.resourcez.com

MCS Access Information and News. For hospitals, workplaces, places of worship, dances, hospitals/healthcare facilities, etc. The Environmental Health Network (EHN):  users.lmi.net/wilworks Click on "Access" which is also known as "Take Heart!"

Consultant to the Chemically and Electrically Sensitive for Access. Works with individuals and public entities toward improving access to housing, medical care, benefits, the workplace, education and to develop self-defense strategies for MCS/ES. E-mail Susan Molloy: susanm@cybertrails.com

CyberCIL of Arizona. The mission of CyberCil of Arizona is to provide innovative, meaningful assistance in accordance with the principles and philosophy of independent living to, and on behalf of, Arizonans with disabilities so that they may attain or continue an independent lifestyle. cybercil.com

Air travelers with disabilities, Department of Transportation Hotline: 1-800-778-4838 The U.S. Department of Transportation is calling on all disability organizations to promote public education about its Toll Free Hotline for air travelers with disabilities through their organization newsletters, list-serves and sponsored events.

The Toll Free Hotline for disabled air travelers has been in operation since August 2002 and is available for callers from 7 a.m. to 11 p.m. Eastern Time, seven days a week. The Hotline serves two main purposes: (1) education and (2) assistance in resolving disability-related air travel problems. * Many disabled air travelers are not aware of their rights and the Hotline, in part, exists as an educational service to inform air travelers with disabilities about their rights under the Air Carrier Access Act and the Department's implementing regulations 14 CFR Part 382 (Part 382). Hotline operators are well versed in the ACAA and Part 382 and can provide callers with on the spot general information about the rights of air travelers with disabilities. The Hotline operators also respond to requests for printed consumer information about air travel rights of the disabled.

* The Hotline can also assist air travelers with disabilities in resolving real time or upcoming issues with air carriers. The purpose of "real-time" assistance is to facilitate airline compliance with DOT's rules by suggesting to the passenger and the airline involved alternative customer-service solutions to the problem. The airline remains responsible for deciding what action will be taken to resolve the issue in accordance with the ACAA and Part 382. Generally, if a caller has a real time problem or an upcoming issue with an air carrier, a Hotline Duty Officer will contact that air carrier and attempt to resolve the issue. For example, there have been a number of incidents in which Hotline Duty Officers have contacted air carriers and convinced them to accept service animals and electric wheelchairs on board flights, to stow folding wheelchairs in the cabin, and to provide requested wheelchair assistance. Air travelers who want information about the rights of persons with disabilities in air travel or who experience disability-related air travel service problems may call the Hotline to obtain assistance

22 Trying to Explain MCS/EI?. . . to myself, family and friends

Cynthia Wilson, of Chemical Injury Information Network, proposes the best way to explain Multiple Chemical Sensitivity is to state that you have it as the result of a chemical injury. It helps to add that you have reactions to small amounts of chemicals along with other health problems.  

This presents a more accurate picture of what is responsible for our illness - the chemical injury. If we use the term sensitivity or allergy, it can be misleading. It might suggest that the symptoms are relatively minor and easily treatable. I believe that "sensitivity" may connote that we are frail persons or that the "sensitivities" may have a psychosomatic origin.

Chemical Injury Information Network.
Trying to Understand MCS/EI. A Brief Overview: by Cynthia Wilson www.ciin.org/what.htm
 
Chemically Sensitive Living.
Description of the stages of chemically induced illness.
www.chemsenlvng.com/disability.html

MCS Referral & Resources. Peer-reviewed scientific papers, official reports, books and book chapters on MCS. The peer-reviewed medical literature on MCS dates from 1952 but more than half the 400+ references identified by MCS R&R were published since 1992. www.mcsrr.org/resources/bibliography


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